Social Supports for Adolescent and Young Adult Polycystic Ovary Syndrome Patients: A Scoping Review

Abstract

Polycystic ovary syndrome (PCOS) is a chronic disorder with negative health consequences for millions of women. The paucity of research regarding interventions targeting the psychosocial symptoms of PCOS for adolescents and young adults (AYAs), susceptible to low self-esteem and depression, warranted this review. This paper provides an overview of research on the social supports currently available for AYAs and identifies areas where further research is required to elucidate their support needs. A scoping review methodology identified 15 studies that met inclusion criteria. Findings revealed that this is an emerging field of research and most included studies originated in North America. Thematic organization of the findings suggested two broad themes: pre-diagnostic support concerns and post-diagnostic support resources. Within the first theme, three sub-themes arose: (dis)satisfaction with information received about PCOS, delayed diagnoses, and a need for increasing healthcare provider support. A lack of research specific to the support needs of transgender PCOS patients was additionally identified. The results of this study can be used to inform the development of evidence-based support interventions and educational requirements for graduate school curriculums that enable future healthcare providers to adequately provide support when diagnosing, educating, presenting treatment options, and directing PCOS patients to support resources.